For years, many people with a muscle disease were given the same advice: take it easy you might damage your muscles.
But during an international workshop of the European NeuroMuscular Centre (ENMC) in October 2024, the conclusion became clear:
For almost everyone with a muscle disease, training is possible, safe, and often truly beneficial.
What does global research show?
To better understand how people with a muscle disease move in daily life, a worldwide survey was completed prior to the workshop by 2,074 participants.
The key insights:
- Many people exercise regularly at home or with a physiotherapist.
- The goal is rarely “sport for the sake of sport.”
- The main motivation is getting through the day better.
- Why people continue to train anyway
Participants who train regularly report clear benefits:
- 66% experience more energy
- Improved daily functioning
- 71% report better overall health
- Less pain
- Less low mood
- Better sleep
And perhaps most importantly:
Once movement becomes part of your routine, it feels less like an obligation and more like something that simply belongs to you.
What makes training challenging?
For many people, exercise does not come naturally. The biggest barriers are:
- Fatigue
- Physical limitations
- Uncertainty (“Am I doing this right?”)
- Lack of appropriate guidance
That’s exactly why keeping it small, practical, and achievable makes such a difference.
From the survey:
- 75% train regularly
- 39% with a physiotherapist
- 37% at home
- 71% experience better overall health